What else should I know before deciding to join the registry?
Research study visits will likely be held at the KPNW CHR clinic on N. Interstate in Portland.
Future research studies may involve investigational vaccines, investigational medications, testing methods, prevention before and after exposure, surveillance of the extent of exposure in the population, and the like.
Research studies looking at vaccines and medications typically involve multiple blood draws and typically involve a placebo (an inactive substance). Some people in the research study receive the investigational vaccine or medication, and others receive a placebo.
Being in the registry does not mean that you will be eligible for a research study. It also does not mean that you have to take part in any research study we contact you about.
You do not have to be a Kaiser Permanente member to participate in this registry, but if you are a member, participation will not affect your care or your benefits.
You are free to say no now or to leave the registry at any time later by emailing CHR_KPNWResearch@kpchr.org. Either way, there will be no penalty. Your decision will not affect the health care you receive or benefits that you are entitled to.
While you are in the registry, if you have questions, concerns, or complaints about the registry, please contact us at 503-335-2486 (local) or 877-900-1125 (toll free).
This registry is being overseen by an Institutional Review Board ("IRB"). An IRB is a group of people who perform independent review of research studies. If you have questions about your rights as a research subject, and/or concerns or complaints regarding this registry, contact Kaiser Permanente Northwest IRB at 503-528-3945.